About 7 years ago, when I was 27 my Dad was diagnosed with Alzheimer’s, a particular form under the Dementia umbrella. It’s the most common one.
Since then, it’s been a journey that’s ripped my family apart and caused me to question everything from who I am to the man I hope to be.
At the time, I didn’t realise what was to come and the two reasons for this site are
For the caregivers : A real human voice on my story with my Dad over 7-8 years. Hopefully which gives you greater insights on what is to come and let you know it is okay to not be okay from someone that has been there and got the t-shirt.
For the friends & family : Advice on how to talk to the caregivers. Go to talk to us
I was the youngest person at the time in a class on dealing with dementia in a workshop I attended with my family and as this disease grows, my hope is to create a resource for others which we didn’t have.
To the only man I will ever love..
There are pages in the menu of everything from dealing with grief to how to ask for help. Feel free to contact me, comment below on a post and share.
Any caregiver I know that’s going through such intense challenges on a daily basis and yet have to endure unnecessary paper work.
The huge hassle of convincing the govt, the bank and other institutions that the patient can’t fill in that bloody form.
That what we are doing is trying to shelter and protect them from themselves.
Up until recently my dad had a full drivers license. That’s insane! Our immediate family knows just how silly that is. When my dad got diagnosed with his dementia condition, there wasn’t a light switch.
Every thing was a manual request and letters to write. Thankfully we got power of attorney although even that was a process.
Is the government aware of the sheer numbers growing of an aged population?
I remember things like “he will have to come in and get will fully tested”. Are you barking serious? The patient was in denial for a year or two and when he did get assessed it was “oh yes we can confirm..”
What caregivers need, is less barriers and obstruction. More understanding and automated digital systems in place. Getting my dads pension alone was a maze of forms I could barely comprehend and I’ve still all my faculties.
It’s hard enough being present at all times and showing caregiver patience with trying to cut through red tape!
Have you experienced something similar? Please share a comment below 🙂